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Ampullary & Duodenal Cancer Research Hub

A community-built guide to make rare upper-GI cancers less mysterious. We combine clinical evidence, crowd-sourced caregiver tactics, and plain-language explanations so families and clinicians can act faster.

Maintainer: Zakk Easterbrook

What makes this project different

  • Evidence-ranked summaries of duodenal adenocarcinoma and ampullary carcinoma treatments.
  • Plain-language storytelling so families understand jargon with everyday analogies.
  • Open contribution model: caregivers, clinicians, researchers, and automated agents can all submit updates.

Quick start

  1. Read CONTRIBUTING.md for how to add research or caregiver notes.
  2. Non-technical contributors can use GitHub’s web editor—no CLI required (step-by-step instructions included).
  3. Agents and developers can run mkdocs serve locally for live preview, then open a pull request.
  4. Want to share without touching Git? Open an issue using the New Topic, Correction, or Human Story template.
  5. Need to upload doctor summaries? Follow docs/share-data.md for safe anonymization.

Directory map

  • docs/ – Markdown source for every page.
  • docs/community/ – Templates & guides for new stories and research drops.
  • docs/AGENT_PLAYBOOK.md – Workflow for OpenClaw and other automation agents.
  • .github/ISSUE_TEMPLATE/ – Guided issue forms for new topics, corrections, and human stories.

Tech stack

  • MkDocs Material for static site generation.
  • GitHub Actions workflow (.github/workflows/deploy.yml) deploys to GitHub Pages on every push to main.

Mission

Rare cancers steal time because knowledge is scattered. This hub is our attempt to weaponize the internet’s collective intelligence—patients, caregivers, clinicians, and agents working together—to surface what helps, challenge what doesn’t, and push toward better outcomes.